JEANNE wrote:There are many, many factors that go into determining what affects T-cell count--disclosure to a potentially supportive family unit would be great--but non-disclosure to an unsupportive/neutral family would be a wise decision also. With a family like Steve's--it could create more problems and stress for him (as it already has).
I'm now convinced that this is where having a "family of choice" can provide the outlet we sometimes need and often crave. Whether it be to express the most intimate of feelings [perhaps through poetry?] or a place to share unhappy news about one's health, it must ultimately be those who
you feel connected to (mutually or not) who fit the profile of someone who should know what's going on with you. I've had friends tell me that their families of choice have meant more to them than their biological ones ever have or possibly could. I know I was listening when I was told this and it must have meant something to me or at least made some sense because I retained it. I do not, however, think that it actually completely clicked until about 5 minutes ago. My point here (I believe) is that it may be more difficult for some of us to
completely grasp the significance of this due to our own perspectives and that it is obviously very powerful. I now see that Steve really *is* out as HIV+, just to those whom he knows he can be, which in a nutshell was essentially the same thing I did, mine just happened to be blood relatives. What works, works.
It is a shame that his mom is the way she is, but he seems to have made at least some peace with that fact by realizing that not only is she not going to change, but that he doesn't expect her to and that it would be counterproductive for all concerned if he pursued to disclose his HIV status to her. It does make me feel better to see that he has done what he knows he can, whether it be his contact with other blood family or those who he considers a family of friends. As long as he has someone. I believe he has his own family and that seems to give him what he truly needs, despite our constant rephrasing and prodding, mine included. I still urge full disclosure when possible, but I'm beginning to see just how different the situation can be from my own and others.
My, how things can change depending on the approach by which you look at them. I'm seeing that right here for myself. I'd like to think that something could be said to make a lightbulb come on in Steve's mom's head, but unfortunately, we do not live in a perfect world. Bravo to Steve for his willingness to endure this thread and share his experience. Thank you as well for your persistance to make us understand. I think I finally get it. I know for sure that I've grown as a person just from reading all the comments and trying to internalize them to get a better understanding of Steve's situation. Until now, it was just all of us saying the same things back and forth, over and over. Through the gentle reiteration from ALL of us, things eventually came into a better light for me.
An enlightened Ox